One of the biggest problems with epilepsy and honestly all forms of disability is not getting the answers to the questions we ask. The thing where we need to be fair is knowing that the doctors and nurses who we get frustrated with, what they’re taught at University is A , B , C . Yes it’s incredibly frustrating not knowing the answers there and then but look at things from there perspective. I bet you probably didn’t think about this with the frustration built up inside you. It’s just as frustrating for them because they can’t answer the questions and as they sit there , they just feel helpless.
So my only piece of advice is, if they don’t have the answers. It’s not keep going on and on with it, Don’t get me wrong it’s very frustrating but the build up of frustration isn’t going to get you anywhere any time fast. As I’m sure your aware, stress can make seizures worse. Take a breath and leave the negatives outside and take the answers the doctors give you as a positive towards getting your final answer. It’s better to get a answer to a question you hadn’t thought of then leave the room just as clueless as when you first walked in. So just think and listen and main rule TAKE A BREATH. Thanks